Since my book is expected to be released in late 2025, here are some reliable MCAS resources to explore in the meantime.

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For more information about mast cell disease

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• Dr. Lawrence Afrin: A leading expert in Mast Cell Activation Syndrome, practices at the AIM Center for Personalized Medicine (aimcenterpm.com) in New York, USA.

• T.C. Theoharides: Offers research, publications, video presentations, lecture slides, clinical studies, and useful links at mastcellmaster.com. Based in Massachusetts, USA.

• Dr. Gerhard J. Molderings: Affiliated with humangenetics-bonn.de in Bonn, Germany.

• Dr. Tania Dempsey: Visit drtaniadempsey.com or follow her on Facebook. Based in New York, USA.

• The Mastocytosis Society: Provides extensive information about mast cell disease, research, support, and resources at tmsforacure.org. Based in the USA.

• American Academy of Allergy, Asthma and Immunology: Visit aaaai.org. Based in the USA.

• Mastocytosis-mcas.org: An international resource for mast cell diseases.

• Mastocytosis.org.au: Advocacy, education, research, and support, based in Australia.

• Ukmasto.org: Advocacy, support, and proponent of world-class research on mast cell diseases based in the UK.

• Mastcell360.com: Information, products, and personalized MCAS solutions. Based in Ohio, USA.

• Mastcellaction.org: Information, support, and resources based in the UK.

• Mastattack.org: Extensive information about living with mast cell disease.

• Supertmastcell.org: Super T’s Mast Cell Foundation, based in Pennsylvania, USA, supports patients and caregivers through grants, awareness, and education. 

 

Books

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• Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity by Dr. Lawrence B. Afrin.

• Mast Cells United: A Holistic Approach to Mast Cell Activation Syndrome by Amber Walker.

• The Trifecta passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome by Amber Walker. 

• My Crazy Life: A Humorous Guide to Understanding Mast Cell Disorders by Daniel & Pamela Hodge.

 

Support groups on Facebook (not inclusive)

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• The Mastocytosis Society

• Mastocytosis and Mast Cell Disorders - An Integrative Approach

• My Crazy Life with Mast Cell Disorder

• Mastocytosis and Mast Cell Disorders - A Holistic and Integrative Approach

• Mastocytosis Awareness And Support Group

• Mastocytosis Awareness

• Mast Cell Activation Disorders Forum

• Masto Moms

• Masto Kids

• Mastozytose (German)